I’m tired and fed up; fed up with being brave, fed up with pretending everything is going to be okay and honestly a little resentful at putting my life on hold again. The truth is that despite being in denial for some weeks, my lovely Dad will never be the same again and whilst he’s made a wonderful physical recovery he struggles most days to remember what day of the week it is and what he had for breakfast. Heart-breaking though it is, I have to admit that overnight we have lost my beloved Dad.
This is the post I have dreaded writing the most because by doing so I have to finally admit that my Dad will probably not be coming home and writing those words fills my heart with an unfathomable sadness. I know that my Dad’s no more special than any other dad but to me he’s been the anchor that has steadied our ship and his kindness has enveloped us in an embrace that warmed our hearts just like an old favourite sweater on a winter’s day, reassuring us that there was goodness in the world on even the darkest days.
The surgeon made him aware of the risks when he had his hip operation and we were told that they had a medical dilemma which meant that they couldn’t treat both the stroke & shattered hip simultaneously but he had been adamant that he wanted to pursue the operation. I remember someone telling me that the sooner you treat a stroke the more of the person you save and in my Dad’s case it was to be very little. When the old fella made the decision he was completely coherent, had been driving the “old folk” to the supermarket the day before for the weekly shop, read a broadsheet every day and was able to discuss current affairs almost as well as a foreign correspondent; now he struggles to operate a basic television remote.
The fact of the matter is no amount of sleep, medication or a different environment will alter that now. Our lives have changed dramatically, I go to work and visit him on the way home every day but when he thanks me for coming I realise he doesn’t remember that we had the same conversation the day before and the day before that. There will be no evening telephone calls to discuss our day & bid him goodnight because quite simply he is unable to concentrate on anything for very long. He still kisses my hand when I leave that’s on one of the rare occasions when he hasn’t fallen asleep mid conversation.
We’re not the only family who have been left devastated by the effects of a stroke and no doubt we won’t be the last but at this time and moment I am suffocated by black despair. There’s no quick fix this time around, no magic potion waiting to wake him from this deep slumber and regrettably we are just starting out on this journey of unchartered territory. Some days fragments of my old Dad appear and then just as quickly disappear again. There will be lots of dragons to slay along the road not the least being the callous and faceless bureaucrats with their senseless & often ridiculous form filling.
As he has always told me we never know what’s around the corner, I think I’m all out of wishes and I have frequently wondered during the past few weeks if my Dad really understood the decision he made exchanging physical well-being for mental coherence. I can’t help but feel that sometimes he made a deal with the devil and came up short-changed.